Important Care Resources

“Knowledge and Collaboration Are the Best Medicine for Dystonia.”

MEDICAL INFORMATION

U.S National Library of Medicine
U.S. Food and Drug Administration (FDA)
Medical Library Association
National Health Council
Health Finder
HealthGate
InteliHealth - a subsidiary of Aetna

LEGAL ASSISTANCE

Disability Law Center
Center for Disability Law & Policy of PA (Employment/Rights)
Cornell Law School- Disability Defined

TRAVEL ASSISTANCE

Patient Travel

DISABILITY

Disability Info
Disability Guide
Structure of the ADA
Historical Context of the Americans with Disabilities Act
Improving Chronic Care
Social Security Administration
UnumProvident
Exceptional Nurse
Disabled2Work
Half the Planet
The Nth Degree
Disability Secrets

HEALTH INSURANCE

NCQA (National Committee for Quality Assurance)
eHealthInsurance
Families USA Medicaid
Centers for Medicare and Medicaid Services
AHIP (America’s Health Insurance Plans)
NAIC (National Association of Insurance Carriers)

GENETIC TESTING

Understanding Gene Testing
GeneForum
Neurocast (Highlights gene-testing for Dystonia)
Jewish Genetics

NUTRITIONAL INFORMATION

HealthyEating
DietTalk

PAIN MANAGEMENT

Managing Pain
American Pain Foundation
American Chronic Pain Association
National Pain Association

PHYSICAL THERAPY

Aquatic Therapy
Spine Online
Fit for Life
Rehab Outlet
Shape Up America
Ability Hub

ALTERNATIVE MEDICINE

Herbal Therapy
Pastore Formulations
MedHerb
MotherNature
Chiropractic Neurology
Functional Restoration
Locating a Qualified Practitioner
General Chiropractic Care
American Chiropractic Association
Biofeedback
Dr. Andrew Weil
Massage
American Massage Therapy Association
Hypnosis
American Board of Hypnosis
Acupuncture
American Academy of Medical Acupuncture
British Acupuncture Council
Therapeutic Touch Spine Info
SpineHealth.com

MENTAL HEALTH

NYP-Psychiatry Cornell
Grief and Loss

FOR PARENTS

Brave Kids
The Make A Wish Foundation
BlackBoards and Bandages

FOR CAREGIVERS

Family Caregiver Alliance
Center for Family Caregivers, National Alliance for Caregiving
The Well Spouse Foundation

ADDITIONAL USEFUL LINKS

Evaluating Hospitals and Care (USA only)
Joint Commission on Accreditation of Healthcare Organizations
Ratings by Doctors
Healthcare Without Harm
Long-Term Care
National Association for Home Care
Assisted Living Federation of America

PROFESSIONAL ORGANIZATIONS