Stories For Hope

Many of you have contributed your own personal experiences with dystonia. For many site visitors, they have been inspirational. Feel
free to contribute your story and we’ll be happy to post it here. Think of these as Stories for Hope! We’ve provided each story as a Word document or PDF. Some of these stories are in our Newsletter
issues.

Carol’s Story
Robert (Pdf Format) - Lingual Dystonia
David (Word Format) - Lingual Dystonia
Katie- Generalized Dystonia with Dystonic Storms
Donna (Website) - Tardive Dyskinesia
Jenelle and Leif (Our 1st Newsletter!) - Dystonia with Dyskinesia/Pregnancy
Howard- Cervical Dystonia
Dot Evans(Word Format)-Paroxysmal Dystonia)
Candy’s Story (Website)
Lorri’s Story - Torticollis and Depression
Dr. Robert Zozus’ Story - ST with Dysphonia
Kim’s Story(Word Format)-Oromandibular Dystonia (Jaw Dystonia)
Bren’s Story - Generalized Dystonia
Dianne- Dystonia and Dogs!
Bodie- Lycopene Use and Dystonia
Carol’s Story - Biofeedback Use
Ramona’s
Story - Generalized Dystonia
Clive’s Story - OMD from a Brass-Playing Musician
Dianne’s, Bodie’s and Carol’s Stories can be read here: Dogs, Lycopene, Biofeedback(Word Doc)
Brittany’s Story with ST ( pdf file )

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Karen (From New Zealand!) —–> December 2006 (Pdf Format)
Terri’s Story —–>December 2006 (Pdf Format)
Terri’s C. Story —–> December 2006 (Pdf Format)
Mary Bessie’s Story —–> February 2007 (Pdf Format) - DBS Success
Diane’s Story —–> February 2007 (Pdf Format) - ST, Driving and Border Collies
Phil’s Story —–> April 2007 (Word Format), (Pdf Format) - OMD and Photography
Sheri’s Story —–> April 2007 (Word Format), (Pdf Format) - Generalized Dystonia and Photography. Sheri’s Photography can be found on our Artistic page as well as on her Yahoo site.
Barbara’s Story “Living with Dystonia” ——> April 2007 (Word Format), (Pdf Format)
Tyler’s Story (DBS) —–> go to www.tylershope.org
A Case Study (Phenergan Use) —–> June 2007 (Pdf Format)
Mary’s Story (Post-traumatic CD) —–> June 2007 (Pdf Format)
Lorri’s Story: Alternative Medicine Use ——> Sept Newsletter 2007 (Word Format - Longer Version),
(Pdf Format)
Nancy’s Story: The Use of Methadone for Pain Control —–> Sept Newsletter 2007 (Word Format - Longer Version),
(Pdf Format)
Pam’s Story: Opposing View of Methadone Use —–> Sept
Newsletter 2007 (Word Format - Longer Version),
(Pdf Format)
Pat’s Story: Massage Therapy and ST —–> Sept Newsletter 2007 (Word Format - Longer Version),
(Pdf Format)
Ellen from Missouri: DRD, Dopamine-Responsive —–> Sept
Newsletter 2007 (Word Format - Longer Version),
(Pdf Format)
Martin Westall on Amy and Joy Westall —–> Read about the transformation in family life since his daughter had DBS surgery in Feb 2003 and his wife a year later at www.parkinsonsappeal.com
Tom’s Story with ST and Weight Loss —–> Click here http://www.deflame.com
Marcellin’s Story about Blephropharospasm —–>
December
2007 Newsletter
Sallys’ Story about Dopamine-Responsive Dystonia—–> December 2007 Newsletter
Nita’s Story : Wilson’s disease and Dystonia(Word Format)
Beka’s DBS Update parts 1, 2, 3 —–> DBS Webpage

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Tom’s Story —–> Feb Newsletter 2008 or (Zipped Pdf File)
Dianes’ ST Story —–> Feb 2008 Newsletter
The Garman Special —–> Feb 2008 Newsletter
Don’s Story - Kemadrin and Myobloc Use
Linda’s Story with Oromandibular Dystonia —–> April 2008 Newsletetter(Pdf Format)
Sharon’s Experiences with Dystonia —–> April 2008 Newsletter(Pdf Format)
De’s Story —–> June 2008 Newletter
Bren’s Story Danskin Triathlete —–> June 2008 Newsletter
Carol’s Story and Alternative Medicine —–> Dec 2008 Newsletter
Amy Behar’s Story with Dystonia —–> March 2009 Email Alert
Britanny’s Experiences with Cervical Dystonia —–> Word Doc myexperiencewithspasmodictorticollis1