Blogs

Dystonia Diary

“This is what it’s like to have cervical dystonia - the good, the bad, and the ugly. Actually there’s
nothing good about it”

Blog: Dystonia Diary, by Denise Adams.

Neurons With Dystonia

“I am currently a doctoral candidate in neuroscience and psychology. I am studying the neurophysiology of the basal ganglia in the context of neurodegenerative disease and dysfunction resulting in movement disorders. I have a personal interest as I have had generalized tardive dystonia for over 11 years. My dystonia was acquired from neuroleptic medications that were given to me to treat food poisoning.”

Blog: Neurons with Dystonia, by Synaptic Jen from Indiana

New Blog Site by Jenelle : www.caringbridge.org/visit/jenelle

Dystonia Monologues

“I live by the waterfront in beautiful South Wales. I love life and believe that acting out of love
rather than fear is extremely powerful. I love people, cats, nature, reading, family and music. I see my life as a blissful journey
interwoven with loving experiences and challenges.”

Blog: Dystonia Monologues,
by Vynne Frederick

Rick Stabb’s Diary

Rick Stabb writes about his 8-year-old son’s journey with DBS.

Blog: Rick Stabb’s Diary

Spasmodic Torticollis

Blogs can also be found at the Spasmodic Torticolliswebsite.

On MySpace:

Debbe’s Blog: www.myspace.com/dystonian

http://www.myspace.com/madratsmissus- on paroxysmal dystonia

http://www.myspace.com/faustamartiania

http://www.myspace.com/celtic_mist- on lingual dystonia

http://www.myspace.com/dystoniaek

http://blog.myspace.com/roybutlerdj

Additional Blogs :

http://www.mindhacks.com/blog/2005/05/scott_adams_and_foca.html

http://www.ifilm.com/video/2830315

http://mccanncan.blogspot.com

http://www.writerswrite.com/wblog.php?wblog=725071

http://blogs.webmd.com/womens-health/2007/06/pelvic-muscle-twitches.html

http://indiawritingstation.com/neil-marcus-soars- features Neil Marcus of the DMRF

http://www.fighting-dystonia.com/index.php?P=HM- from Texas

http://ganolen.wordpress.com- Glens’ blog about dystonia and disability from Texas

http://www.lightinearthenvessels.blogspot.com- by Ramona on DRD and DBS

http://michaelpark.net

http://wordpress.com/tag/dystoniamovement-disorders
- by Debbie Mack

http://rlbatesmd.blogspot.com/2007/10/focal-dystonia-of-hand.html- lessons from a plastic surgeon

http://spasmodicdysphonia.blogspot.com

http://dystoniadiary.blogspot.com

http://socaldeni.googlepages.com/home

http://360.yahoo.com/minervalis_barnowl

http://www.howtocopewithpain.org/blog/102/heres-one-reason-its-hard-to-move-when-you-have-pain/

http://www.godofbiscuits.com/blog/archives/2007/11/botoxic.html

http://mackthewriter.wordpress.com/2007/11/07/but-you-dont-look-sick

http://wordpress.com/tag/task-specific-focal-dystonia
- Musician’s focal dystonia and the French horn

http://rlbatesmd.blogspot.com/2007/10/focal-dystonia-of-hand.html

Alice’s Blog:  http://aliceheartsandflowers.blogspot.com/search?q=

http://lifewithshaky.blogspot.com
NEW!

http://ducknetweb.blogspot.com

http://thiswriterscramp.blogspot.com/2009/07/spotlight-care4dystonia.html

http://www.lifewithdystonia.com- by Rogers Hartmann

http://wwwdystomag.com NEW!

http://michaelpark.org NEW!
By DBS patient with Generalized Dystonia

http://dystoniasymptoms.com/index.php NEW!

http://community.wegohealth.com/profiles/blogs/tardive-dystonia

http://www.bicyclingtouringtales.com Cycling across America by Kathy Krull NEW!

http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=417686487&blogId=443800617 A snapshot of hemi-dystonia. NEW !

http://www.changing-keys.com/blog Musician writes about focal hand dystonia NEW!

Copyright C4D, 2007-10.