For the last 10 years or so, C4D has been instrumental in Setting the P.A.C.E.:
- Focusing on the quality and delivery of patient care
- Creating immense media awareness, which began with the first ever national televised story on dystonia by MSNBC Dateline in 1998
- Attempting to strive towards a collaborative network with other dystonia non profits, which has yet to be accomplished with all groups on a consistent basis
- Creating a dynamic social networking site with a focus on Education of dystonia for patients and their families on our Dystonia WegoHealth Ed Forum.
New ventures now have to be created on a global scale. We encourage you to learn about other dystonia-related causes and organizations statements,goals,and missions at their own websites.For example read about the ADS at CRISIS of DYSTONIA RESEARCH. We all should be UNITED as ONE.
Read our Archived Newsletters
Learn about Hope. It is HERE !
Reach for Support online
Participate in a RETREATS in the US
Join the Make Your Mark Campaign
C4D continues to donate ST books and other materials to free of charge to those asking for awareness material. Please visit our MEDIA page to listen to Dr. Mehmet Oz, MD talk about dystonia with our Founder. Alice Cooper, the Singer, has donated his voice to PSAs that will be downloudable for you to access and send to local radio stations for awareness.
Our Board of Directors include active healthcare professionals specializing in research, education, healthcare systems, insurance, and leadership:
Laurel Schroth RN BSN CDE
MJ Maltese RN BSN
Sharon Canham-Dixon BS, Optics Research
Jessie Drew Cates RN MS NP Phd. Ex Oficio
Our Science Advisor is Dr. Michael Kaplitt MD, PhD
Vice Chairman of Neurological Research at Weil-Cornell MC, NYC, USA.
In early 2012 we lost our "beloved" Nancy Muller, board member; who also served as past president of NSTA. She is sorrily missed.
In the News : Ability Magazine 2010, Nursing Spectrum 2011 feature our Founders' story with DBS and Dystonia
FollowDystonia on FB on a Global Level ! NEW !
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