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Celebrities
For years now, many with dystonia have been seeking a "celebrity" to join the cause in hopes of increasing awareness and research funding. We have compiled a list of celebrities with various forms of dystonia. Be aware that you just might be a celebrity for dystonia. Tell your story to the Media.
VISIT OUR MEDIA webpage.

  • Mary Storm- Dystonia (Poet, Writer)
  • Billy Mclaughlin - Focal Dystonia (Music)
  • Paddy Doyle - Generalized Dystonia (Author, Screenwriter, Activist)
  • SHANIA TWAIN- DYSPHONIA ( COUNTRY MUSIC STAR ) READ HER NEW MEMOIR !
  • Dawn Brinkley - Focal Dystonia- CD ( Mrs. North Carolina 2010, Activist
  • Hallie Neill Focal Dystonia- CD ( NY Opera Singer )
  • Glen Estrin - Muscians' Dystonia ( Sinatra Band member )
  • Leon Fleischer - Focal dystonia (Music)
  • Debra Freidman - Dystonia (Music)
  • Jason Solomon - Focal Dystonia ( Music )
  • Scott Adams - Focal Dystonia (Creator of Dilbert)
  • Diane Rehm - Dysphonia (NPR Host, Writer)
  • Robert F. Kennedy, Jr. - Dysphonia (Activist, Environmentalist)
  • Founder - Dysphonia (United for Peace)
  • Jenny Craig - OMD (Diet Guru)
  • Lynn Johnston - Focal Dystonia (Cartoonist)
  • Rem Murray - Cervical Dystonia (Former NHL Hockey Player)
  • Chip Hanauer - Dysphonia (NASCAR Driver)
  • Linda Thompson - Dysphonia (Music)
  • Johnny Bush - Dysphonia (Music)
  • Henry Austin - Dysphonia/Focal Dystonia (Music)
  • Martha Grimes - Focal Dystonia (Author)
  • Alison Young - Focal Dystonia (Music)
  • Reinhard Gerbel - Focal Dystonia (Music)
  • Derek Thompson - Dystonia (UK Actor)
  • William Roth - Dystonia/DBS (Author, Disability Advocate)
  • Opus - Cervical Dystonia (Cartoonist)
  • Julie Sheldon - Dystonia (UK Author, Dancer)
  • Christy Brown - Dystonia (UK Author)
  • Alex - Generalized Dystonia with DBS (Dancer featured on the TV show The Doctors)
  • Joel Goldman- Focal dystonia ( US Author )
  • Rogers Hartmann- Dystonia ( Producer, Activist)
  • Laurel Chiten- Cervical Dystonia ( Producer, Films)
  • Layla Love- Dystonia, OMD, Blepharospasm ( Photographer, NYC)
  • Michael Sparks- Dystonia ( Photographer)
  • F. Rangell- Focal Dystonia ( Artist, Pianist)


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