What a long weekend…
It has been a really long weekend- too long. My dystonia has returned and I hate it. I can’t walk straight anymore, eating upright is difficult. I bought out the entire Gatorade supply at Lee’s market around the corner on Friday. They must have thought I was crazy. 4 trips required from my apartment to get my supply. At least I would be able to ward off any signs of dehydration. And it has been darn cold today. Fall has truly arrived, so has bloody dystonia. My head is turning to the left by 90 degrees. I look like an ” weirdo ” again, people are staring as I walk the streets. This is frustrating. I was last programmed August 10th or so, about 7-8 weeks ago. I feel like screaming and writing a letter to Medtronic about device improvements. Of course, they won’t return a reply. Bottom line for them is profit. I’ve slept most of the weekend. Tomorrow begins a new week - hopefully with a scheduled MRI and appointment with my neurosurgeon ( who now happens to be jealous of my new dog ! ). ( chuckle ) I’m jealous of people whose body’s move with fluidity- they begin with a beginning, middle and end. I don’t know where I am this weekend. Is there ever going to be cure for dystonia ??? Time for MyoBloc reevaluation.
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