Your Feedback
Recent Feedback from our Website visitors. Feel free to send in your comments, suggestions so that we can serve You and the dystonia community in the best possible manner.
Sample Comments received ( partial list ) :
1) You have outdone yourself once again. The information is fabulous - k.s
2) The website is simply AWESOME.- s.d
3) Please thank your website designer, Megan, for doing such a great job. Your site is one of a kind.- r.f
4) I’m so happy to see someone focusing on treatments such as nutrition and pain relief. It all plays a role.- l.r
5) Beka - where do you get all your ideas? Th site is wonderful.- r.k
6) The colors make the site clear and concise. It is filled with lots of
great info. I will pass it along to everyone I know.- H.F
7) Beka- would you consider coming to talk to our Support Group ? We wouldlove to have you. - a.s
8) The Artistic Forum is superb. It motivates me to do something now. - d.k
9) The pain relief section and oral medication is really well done. Conciseand clear. This is the site of my choice now. - b.t
10 ) How can I volunteer for you, Beka ?? - c.d
11) You have always thought “out of the box”, which many have not understood. But you’re a nurse and know what we, patients, need and deserve. Your site is what we have needed for a long time.- a.k
12) Please send me 100 of your new magnets. What a great awareness idea ! -j.m
13) Hi Beka - I want to contribute my own story with dystonia. - p.m
14 ) You and Megan deserve alot of applause. I love the site. The movie is sooo cool. - h.w
15 ) The website is simply great. - m.s
16) Where do you find the time to do all this ? You have always amazed me. I met you at one of the Symposiums. You were genuine, truthful and didn’t “beat around the bush ” with any of my questions like most docs do. - c.l
17) Wow…could you send me 1000 dystonia magnets. I lead the Toronto Support Group and my son is a youth director at a synagogue and can distribute several hundred in his “bagel box” fundraiser. -w.p
18) Beka - Will you be in Baltimore at the Dystonia, Inc Symposium. I hope so. - k.g ( Yes, Beka will be there with an education table ! See you there ! )
20) Hi Beka- Can you send 1,000 magnets to us in South Africa or am I being too greedy ? A great idea for awareness. - G.
21) Kudos to the giant steps you are taking and the efforts you are making. K:)
22) You have an awesome site. An Original. - l.s
23) I think your website is simply great. Thank you so much for helping me find doctors who give Myobloc in Hawaii. - T.B
24 ) I’m sending you a donation. Your site is awesome, lots of information, and easy to navigate. ~ T.O
24) Thanks for doing what you have been doing for years. You should be applauded. ~ j.s
25) Thanks for supporting us. The auction items were fabulous. ~ Sandy Issacs, Dystonia Association of Kentucky
26 ) How do you do all this ? ~ Howard, DySTonia, Inc.
27 ) Please help - I can’t get into the Survey. I want to answer the questions. ~ l.s
28 ) Thank you for all you do- The Survey is a big PLUS ! ~ D.N
30) Hi beka - I’m ready to start MyoBloc Injections. What do you suggest ? How did you do with the shots ? ~ k.m
31) beka - I got your Books. Wow! ~ a.l
32) Hello Beka - I’ve been meaning to write for awhile. I just love your website. Can you answer some questions about cervical dystonia. I’m 24 years old…~m.s
33) Hi!- I found your website today and would love to spread the magnets in my area. I too, am from Michigan. Would it be okay to have 100 magnets? ~ K.O
34) Beka, I loved the newsletter, absolutely loved it. Thank you so much for all the hard work and a special thanks to your sponsors and contributors. I love that you can read it two ways. PDF’s drive me nuts with tremor, being able to read it in Word is just perfect.You are doing a great service to all of us.Thank you. ~ E.
35) Your newsletter was forwarded to me by….Please send me your newsletter in the future. Fabulous Information. Tahnks alot , Beka , fo all you do. ~E.D.
36 ) Hi Beka, Thank you for sharing this, and I look forward to reading about your experience when that is posted on the Website. You are an INCREDIBLY BRAVE AND COURAGEOUS person!!!!!! May God Bless you always.
I will pass your email along to my support group. Keep me posted on how you’re doing, you are an inspiration to all of us who suffer with this mysterious disorder!
Love & Hugs,
Barb Ellis
Support Group Leader
San Fernando Valley Dystonia Support Group
Send your comments directly to infoc4d@aol.com . Thanks !
37) Beka - You must be the most active dystnia person on this EARTH ! ~ Turid.
Copyright.c4d. 2006-8.