What is Dystonia?
We have redefined Dystonia as a brain disorder set apart from other disorders of the brain by the over-activity of a specific group of muscles and/or muscle such as a limb, facial area, arm, or vocal cords. It is the over-activity of these specific muscles that causes uncontrolled movements and tremors, persistent muscle tightening, and strange body poses. (Read more ... )
Learn More About...
Treatment For Dystonia. Learn about oral medications, botulinum toxin, DBS surgery, and using nutrition to treat dystonia. (Read more...)
Disability. There are two forms of possible benefits for which you may qualify... (Read more...)
A Patient's Bill of Rights. In 1998 many health plans have adopted these... (Read more...)
Advocacy. We are working to improve access to quality care, eliminate discrimination, and spread word about dystonia issues... (Read more...)
Care For Dystonia
How To Cope. Coping with illness is a daunting task for people already exhausted by the debilitations of the illness... (Read more...)
Find Support. So that everyone will receive the best possible answers and help, we have decided to create... (Read more...)
Alternative Care. Due to the increasing interest in alternative and complimentary medicine... (Read more...)
Pain Relief. Pain often accompanies diseases of the bones, muscles, joints, and skin, which affect millions of Americans... (Read more...)
If you want to learn more, we've collected Patient Stories in our Community News section, included Surveys in our Research News, and linked to many other resources in our Library under "Resources". Is there something you're searching for but don't see here? Contact us and let us know -- we want to provide you with information that is helpful to you!
On Air : The musician "Rocker" Alice Cooper has donated his time and voice to three Public Service Announcements (PSAs) for dystonia and tremor. You can listen to them right here as they are being heard on Adult Rock Radio Stations across the U.S. Keep checking back as you might find a Hip Hop Star doing a voiceover for dystonia and tremor in the future. We are in deep gratitude to Buckley Broadcasting KSEQ/ KIOO. Listen to the PSAs on our Media page!
