Welcome to Our New Website

Posted on February 21st, 2010 at 4:11pm under Updates

WELCOME to our new, streamlined and up-to-date website. We have reformulated our website to guide you through comprehensive dystonia symptoms, effects, treatments, botulinum toxin, surgical interventions, prose, books about dystonia, awareness tools, media attention and much more. Feel free to send us suggestions, ideas and feedback. We welcome all your comments.

UPDATES

  • National Geographic TV Special on Muscles AIRS June 11, 2010.
  • A new organization has formed at www.dystonia.us . Do you know where your money is going? How are donations truly being distributed towards dystonia and a cure?
  • Our work with the ADS has led their Founder to be profiled by the Princeton Weekly. Way to Go , Noel ! NEW !
  • US Military increases research funding for dystonia and other disorders. NEW !
  • Dystonia Cycling Across America Tour- Meet Kathy online. NEW !
  • MARK YOUR CALENDARS - LIVE DYSTONIA CHATS began March 14, 2010 in collaboration with the ADS. Contact info@dystoniasociety to register. Space is limited. NEW ! NEW !
  • C4D Founder hits the news online with her Horsemanship after DBS.
  • Neurontin under FDA Scrutiny NEW !
  • A new book is available, The Dystonia Patient, by Dr. Michel Okun, MD at Amazon.com.
  • There are multiple clinical trials involving various forms of dystonia located at www.clinicaltrials.gov. Participate and create change in all forms of dystonia. Let’s not tunnel vision ourselves with only DYT1 torsion protein research. Let’s expand into care, quality of life and accurate epidemiology numbers!

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  • Join our Dystonia Ed Forum today. Receive answers to your questions today. The ONLY forum moderated by an active healthcare provider, who herself has dystonia and underwent DBS in 2004, with the aid of several dystonia activists. We have over 320 active members. Come, Share and Join.
  • How many visitors have we had to our website since Jan 1, 2010 ? Find out on the page Our Work and Who We Are!
  • Need Help with SSI? Contact Nancy, our West Coast Regional Director, at NMuller406@aol.com.
  • New! A new website focusing on the use of Reglan can be found at www.tardivedyskinesia.com.  NEW !                       ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
  • Our “Avoidable Medication List” is on Our Publications page.
  • NEW!  Drug Information - DrugWatch.com is a comprehensive resource featuring information on the drug side effects of various medications, including prescription and over-the-counter drugs. NEW !

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       Site Updated : 27. May 2010.