Recommended Reading

The following books are written by people living with or having experienced dystonia in some way. They all are available online at Barnes and Noble or at Amazon. Happy reading!

I’m Moving Two: A Poetic Journey with Dystonia
Beka Serdans, RN (2000)

I’m Moving on . . . Are U?
Beka Serdans, RN (2002)
Personal Accounts about living with Dystonia 24/7 by our Founder. Initial version released to the Dystonia Medical Research Foundation in 1998 as “Dystonia is…” (Click here to read a review.) Online Excerpts are now available for reading on our Moving Series.

The God Squad: A Remarkable True Story
Paddy Doyle (1988, released 2005)
“[This] is an extremely well written book that took me through the whole range of human emotion. I laughed, cried, was angry and happy as the author led me through his life from 4 1/2 years old through the epilogue. It is a book that I could not cast aside to finish later…..the 236 pages were rapidly devoured in a few hours.” ~ Amazon Review

Dystonia: A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References
ICON Health Publications (2004)

Learning, Coping, Living: A Woman Who Describes Her Life Living Successfully with Dystonia
Bette Levine (2004)

Surviving Dystonia
Carmine L. Petrangelo, Susan Kelly (Editor), HarperCollins Staff (Illustrator), Linsay Poulin (Illustrator) (2004)

Dystonia: The Disease That Distorts
Eugene Smith

101 Simple Suggestions And Quotations To Express Compassion And Empathy: An Aid In Healing Ourselves And The World
Linda M. Furiate (2005)
“When we came into this life, we were never promised a length of time, only the ability to decide our day to day living.”

Spasmodic Dysphonia: The Unspoken Voice Disorder
Tom Johnson

Speechless: Living with Spasmodic Dysphonia (1995)
Dot Sowerby, Jean Newcomer, Michael Rolnick, Michael Rontal, French O’Shields

Essential Tremors: Poetry…trials with smiles
Elsie Doll

Lucky Man: A Memoir
Michael J. Fox (2004)

Always Looking Up by Michael J. Fox ( 2009 ) Excerpts at Fox Fdt.

Additional hard-to-find Books can be found on AbeBooks.